Charley’s Fund and Duchenne Muscular Dystrophy
The cornerstone project of Matt’s Promise is research for the treatment and cure of Duchenne Muscular Dystrophy (DMD). While receiving treatment for his own terminal disease, Matt learned that the then three-year-old son of his childhood best friend was diagnosed with this dreadful and devastating disease. The news hit Matt hard, and he was determined to do all that he could to help Charley and other young people receive the best medical care and emotional support available and to fund research to find a cure.
Pilot Trials
“There is not one FDA approved drug I can offer”
Those are the words Dr. Brian Tseng must utter when families come to his clinic at Massachusetts General hospital seeking a treatment for thier children with Duchenne Muscular Dystrophy (DMD). This disease is the number one genetic killer of children worldwide. For the first time ever in the history of this notorious disease, groundbreaking new therapies are being developed.