It’s been an extraordinary few months since the White House answered over 106,000 Americans who joined The Race to Yes. Because of you, decision makers in Congress and the FDA began to accelerate the process of making safe, effective treatments available to so many boys with Duchenne. You changed the world.
Regrettably, the race is far from over.
In recent days, a series of difficult developments appeared once again and put the path to approval just out of reach. With the medical world watching, and the lives of thousands of boys at risk, we need you to join the next lap of this increasingly challenging course. We need you to know first hand exactly what is happening.
Save the Date for December 16th at 1 pm EST:
A 45 minute webinar to update you on the Race to Yes, Pilot Trials and additional news on the successes that have been achieved in 2014.
(Details to follow – stay tuned)
Thank you Ace.
Matt’s Promise is dedicated to making a difference in the lives of young people affected by terminal illnesses. Our commitment, through select funding of treatment, research, education, and support programs, is to advance the fight against these diseases and to assure the most comprehensive, innovative, and compassionate care.
A Milestone Year for Charley & DMD
This has been a milestone year for DMD and Charley. Charley is participating in the first clinical trial for Duchenne boys that is testing a treatment that can help all kids with Duchenne. (continues…)